The Memoir Of Ms. Butterfly

I’m living on a system that is failing me every single day that goes by.
By telling me that as much as I am fighting for my independence, I will never have it because all I am to this system is money in someone’s pockets.
The system is clueless on what it takes to be me.

Every day brings a lot of planning; it will never be me jumping out of bed getting my day started without syncing my schedule with someone else to ensure that everything I have planned is okay and will get done.

My caregivers become everything my body can’t become for me.
So I don’t particularly appreciate when the system tells these women what they can and cannot do for me because if I solely depend on myself, I would not need the services for my everyday living.

I don’t think anyone has the right to tell someone who requires home care what exactly they need unless they live their everyday life.

Ms. Butterfly Genesis