The Memoir Of Ms. Butterfly

To understand how someone lives, you have to live in their shoes before passing judgment on their lives.
Everyone thinks that I don’t worry about everything because I have around-the-clock care. After all, it is taken care of.
That is far from the truth.
One of my biggest worries is when my aide doesn’t come to work because the whole day is incomplete. After all, I struggle to find a way to manage my day without proper help.
Yes, I live at home with my mom, but she is a woman up in age, and she can’t do the things that she once was able to do for me.
Don’t get me wrong; she’s still my superwomen in many ways because she is still holding me down as a mother should, and there’s nothing better than knowing a mom is holding things down, and she is going to be there for her child no matter what.

My care requires a lot more than her body and age can handle, such as:

getting out of bed.
I am getting lifted into my chair.
I am getting into the shower and getting washed up.
Then getting into my adult pull-ups because my mom is no longer able to lift me onto the toilet, so I have to use adult pull-ups when my aides go home.
If I don’t go out, I get placed in pajamas all day long because it makes no sense to wear clothes at home.
I get up to brush my teeth as well as my hair.
Then I go back into bed to get into my back brace, which I’ve been in most of the day until my aids get ready to go home.
I’m not a breakfast person, but there are times that I need help with feeding. My aides help me with that as well.

That’s why I struggle with people who take their life for granted and what they can do for themselves or are not motivated to do things for themselves because the things I just listed that I get to help me I wish I could do on my own.

Don’t get me wrong; I’ve been blessed to have the same person for the last 28 to 29 years of my life, so she knows me better than anybody else, and she loves me like if I was her child, but there’s not one day that I don’t wish I could do those things on my own, but that was in the card I was dealt.

Despite all my limitations, I’ve been able to live a whole life but with many adjustments just because of my burden. Only the Strong can survive, and I’m a survivor despite my limitation; my name will be out there as a writer And anything else I want to do with my life.
My life is only difficult when I choose to make it difficult for myself, but in all reality, my life is just like everyone else’s life. I live it very differently from everyone else.
Ms.Butterfly Genesis🇩🇴